Huntington's Disease

Huntington’s disease (HD) is a very rare inherited neurodegenerative disease of the central nervous system. HD manifests itself as a triad of motor, cognitive and psychiatric symptoms which begin insidiously and progress between 15-20 years, until the death of the individual. There is currently no cure.

Developing HD can mean that the individual slowly looses the ability to take part in the things they once enjoyed and made them feel valuable, this can be one of the most distressing aspects for them and their families to accept. At Stanley house we focus on restoring challenge and choice in a safe environment, because of our expertise in applying the Non Abusive Psychological and Physical Intervention (NAPPI) strategies individuals are offered environmental and emotional enrichment creating security and wellbeing.

The home managers have supported individuals with HD for many years and have worked closely with the Huntingtons Disease Association (HDA) to develop the exceptional service we have today.

'Stanley House is a unique care facility for people affected by Huntington's disease. We hear a lot about how nursing homes should be a home from home facility and Stanley House truly is. Each resident is cared for according to their individual needs, and perhaps what is most impressive is the lengths that staff go to, to ensure they are able to participate and enjoy the activities they enjoyed before their illness. The happy friendly atmosphere hits you as you walk in the door, and is confirmed by watching staff with residents. It is truly a special place.
In a recent project of a training DVD that the HDA have produced for health care professionals, Stanley House kindly allowed us to film some of their work.
'

Cath Stanley. Chief Executive, Huntington's Disease Association.

Stanley house have worked closely with the Huntington’s disease association ( HDA) since opening in 2007. Over the years we have:

  • Been invited to the House of Commons as part of the ‘All Parliamentary action group’ for HD.
  • Assisted in the formation of a DVD which is still used by the HDA today.
  • Lectured and provided advice to families and professionals
  • Assisted in the development of standards for care which we use as integral parts of our own care planning.

Our Registered Manager Jo McCabe and her team attend the HDA Annual General Meeting each year to further develop our knowledge, skills and support networks.

We are supported by Prof Hugh Rickards , Consultant Neuropsychiatrist he and his team hold a clinic at Stanley house once a month

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